Welfare Network

Project Summary:

This is a case of a 24 years old young boy who was working as a delivery boy in Dubai. His spinal cord got injured in a road accident. He lost sensations in lower part of the body since then. Both his lower limbs are paralysed. His father died a few years ago leaving him to be the only male member in the family who is unable to do anything now. He has a mother and a sister only. Help is required for his treatment.

Beneficiary Data:

CNIC: 32102-47xxxx8-3
Application Date: 18 Feb 2021.

Project Objective:

Health Care

Project Status:

18 Feb 2021: Cheque Issued to his sister for admission fee and private transportation to AFIRM (Armed Forces Institute of Regenerative Medicine).
23 Feb 2021: Documentation completed.
27 Feb 2021: COVID test done for patient and attendant.
01 Mar 2021: Admitted to AFIRM.
05 Mar 2021: Request to bank initiated to open his personal account.
15 Mar 2021: Discharged by AFIRM as they have no special treatment to heal the injury. Did 10 cases but no results so stopped.
16 Mar 2021:AFBMTC (Armed Forces Bone Marrow Transplant Centre) advised to check after 1 month for stem cell therapy. At the moment they have discontinued this therapy since the cases done so far have not given positive results. They mentioned they are in the process of starting a trial procedure regarding stem cell therapy for these type of spinal cord disorders. Since FDA or certified agencies have not approved these procedures because of no convincing results they cannot ethically offer the patient a treatment that costs so much and has no results and not even approved or certified. However, they are carrying out trial procedures but it needs an approval by their institution which is in process.
16 Mar 2021: Arranged for consultation at a private facility in Islamabad "Institution for Regenerative Medicine" who will charge about Rs 1.8 million for the procedure. They have requested a fresh MRI first. The patient was sent back to his home in Multan as his attendant packed up and left him alone.
19 Mar 2021: Sent to Pakistan MRI center in Multan for MRI. Since he had fixation surgery with titanium alloy rods and screws, they are trying to find out if MRI can be done in this case due to compatibility issues. Patient has mailed Rashid Hospital Dubai for info. MRI will be done when info on compatibility of rods with MRI is available else it is considered risky.
25 Mar 2021: MRI done by Pakistan MRI in Multan. Report reveals myelopathic changes. Due to artifact complete evaluation not possible but cord appears severely thinned out due to chronic myelopathic changes.
26 Mar 2021: Sent MRI on whatsapp to the concerned doctor of "Institution for Regenerative Medicine" but he said it was not clear. Advised to contact after 2 months.
27 Mar 2021: MRI Evaluation done in Lahore by Dr. Qasim Bashir (Nero physician), Dr Amir Aziz (Orthopaedic surgeon) and Dr Tanveer Zubeiri (Radiologist). Seems like the damage is irreversible.
31 Mar 2021: Sent printed MRI films by post to the concerned doctor of "Institution for Regenerative Medicine". He said some other doctor will do laminectomy first then he will evaluate.
01 Apr 2021: Requested officially from "Institution for Regenerative Medicine" in Islamabad to give in writing officially (1) Procedure that will be carried out (2) Prognosis in % (3) How many cases of spinal cord injury with paraplegia have been done so far by them (4) What has been their recovery rate for spinal cord injury with paraplegia. They requested 2-3 days to issue the official response.
19 Apr 2021: BMTC was contacted after 1 month as advised. They are still waiting for institutional approval for stem cell therapy.
27 Apr 2021: Reply from Institution for Regenerative Medicine does not answer the addressed queries. Will wait for BMTC response.
28 May 2021: Electric Wheelchair provided.
06 Jul 2021: Funds provided for July 2021 physiotherapy and medicines.
04 Aug 2021: Funds provided for Aug 2021 physiotherapy and medicines.
03 Sep 2021: Funds provided for Sep 2021 physiotherapy and medicines.
05 Oct 2021: Paid Rs 27,000 for Oct 2021 physiotherapy and medicines.
03 Nov 2021: Paid Rs 27,000 for Nov 2021 physiotherapy and medicines.
02 Dec 2021: Paid Rs 23,000 for Dec 2021 physiotherapy and medicines.
04 Jan 2022: Paid Rs 30,000 for Jan 2022 physiotherapy and medicines.
07 Feb 2022: Paid Rs 35,540 for Feb 2022 physiotherapy and medicines.
17 Mar 2022: Paid Rs 25,000 for Mar 2022 physiotherapy and medicines.
12 May 2022: Paid Rs 32,306 for Apr 2022 physiotherapy and medicines.
02 Jun 2022: Paid Rs 28,695 for May 2022 physiotherapy and medicines.
14 Jun 2022: Paid Rs 25,000 for medical check up and assessment in Doctor Hospital Lahore for his spinal cord related problems.
06 Jul 2022: Paid Rs 10,430 for June 2022 physiotherapy and medicines. Total medical expenditure including Lahore visit was Rs 35,430. Advance deduction 25,000. Balance 10,430.
03 Aug 2022: Paid Rs 28,234 for July 2022 physiotherapy and medicines.
05 Sep 2022: Paid Rs 75,000 for Aug 2022 physiotherapy and medicines (Rs 31,121) + Advance for bladder botox injection hospital procedure (Rs 43,879).
04 Oct 2022: Paid Rs 29,775 for Sept 2022 physiotherapy and medicines. Bladder botox injection procedure delayed till October. Rs 43,879 carried forward to next month.
02 Nov 2022: Paid Rs 28,620 for Oct 2022 physiotherapy and medicines. Bladder botox injection procedure delayed as Botox not available through proper legal and documented channel. Rs 43,879 carried forward to next month.
02 Dec 2022: Paid Rs 53,690 for Nov 2022 physiotherapy and medicines (27,060) + Bladder Botox injection purchasing (26,630). Total advance of Rs 70,509 (43,879 + 26,630) expected to be utilized in December 2022 for the hospital procedure for bladder botox injection and purchasing the injection.
04 Jan 2023: Paid Rs 26,000 for Dec 2022 physiotherapy, medicines and bladder Botox injection in PKLI hospital Lahore. (Reimbursement amount 81,560 + PKLI follow up visit advance 14,949 - previous advance adjustment 70,509 = 26,000). Botox injection found from Mr. Rayan +92-333-4134836. PKLI follow up check up planned on 11th Jan 2023.
24 Jan 2023: Rs 9000 paid to purchase wheel chair battery from Noorani Surgical.
01 Feb 2023: Paid Rs 51,655 + 15000 = 66,655 for Jan 2023 physiotherapy, medicines, wheel chair batteries, hospital fee (39,604) + advance for purchase of bladder Botox injection (27000) + advance for Feb hospital visit (15,000) after adjusting last month advance of 14,949.
09 Mar 2023: Paid Rs 28,150 for Feb 2023 physiotherapy and medicines. Bladder botox injection unavailable. Expected in mid March. Advance (42,000) not consumed yet.
10 Apr 2023: Paid Rs 28,080 for March 2023 physiotherapy and medicines. Bladder botox injection unavailable. Advance (42,000) not consumed yet.
12 May 2023: Paid Rs 27,450 for April 2023 physiotherapy and medicines. Bladder botox injection unavailable. Advance (42,000) not consumed yet.
02 Jun 2023: Paid Rs 33,166 for May 2023 physiotherapy, medicines and bladder botox procedure in PKLI. Total cost 75,166 with advance adjustment of 42,000.
04 Jul 2023: Paid Rs 28,010 for June 2023 physiotherapy and medicines.
07 Aug 2023: Paid Rs 29,901 for July 2023 physiotherapy and medicines.
06 Sep 2023: Paid Rs 29,180 for Aug 2023 physiotherapy and medicines.
09 Oct 2023: Paid Rs 29,830 for Sep 2023 physiotherapy and medicines.
29 Nov 2023: Paid Rs 30,691 for Oct 2023 physiotherapy and medicines.
06 Dec 2023: Paid Rs 29,811 for Nov 2023 physiotherapy and medicines.
08 Jan 2024: Paid Rs 28,436 for Dec 2023 physiotherapy and medicines.
07 Feb 2024: Paid Rs 30,871 for Jan 2024 physiotherapy and medicines.
08 Mar 2024: Paid Rs 30,800 for Feb 2024 physiotherapy and medicines.
03 Apr 2024: Paid Rs 32,350 for Mar 2024 physiotherapy and medicines.
06 May 2024: Paid Rs 30,390 for Apr 2024 physiotherapy and medicines.
10 Jun 2024: Paid Rs 33,700 for May 2024 physiotherapy and medicines.
10 Jul 2024: Paid Rs 34,840 for June 2024 physiotherapy and medicines.
05 Aug 2024: Paid Rs 34,450 for July 2024 physiotherapy and medicines.
10 Sep 2024: Paid Rs 34,461 for Aug 2024 physiotherapy and medicines.
03 Oct 2024: Paid Rs 33,831 for Sep 2024 physiotherapy and medicines.
05 Nov 2024: Paid Rs 33,255 for Oct 2024 physiotherapy and medicines.